Addiction Resource Guide
Resource Guide to help professionals and consumers find resources for dealing with addictive problems.
Alcohol and Drug Clearinghouse
A Substance Abuse and Mental Health Services Administration site includes fact sheets about specific drugs and prevention guides.
American Academy of Allergy, Asthma and Immunology
A resource for parents to learn about a variety of allergies and asthmas.
Angelman Syndrome Foundation
This national website provides information, research, and education regarding Angelman Syndrome. It offers help and support to families and friends of people with this syndrome.
This national site provides answers to commonly asked questions.
Autism and Asperger Syndrome – MAAP Services
MAAP is a non-profit organization that provides information and advice to families of more advanced individuals with autism, Asperger’s syndrome, and pervasive developmental disorder (PDD).
Down Syndrome Society
The National Down Syndrome Society envisions a world in which all people with Down syndrome have the opportunity to realize their life aspirations. NDSS is committed to being the national leader in enhancing the quality of life, and realizing the potential of all people with Down syndrome.
Epilepsy.com is an online resource provided by the Epilepsy Therapy Development Project. Their mission is to inform and empower two groups of patients and their families: those facing newly diagnosed epilepsy, and those struggling with epilepsy that has resisted treatment.
The American Academy of Family Physicians sponsors this site. Search on a variety of topic areas: symptoms, conditions, diseases.
The Family Village is a web site for children and adults with disabilities, their families, and their friends and allies. Family Village brings together thousands of online resources in a directory. The Family Village library has information on over 300 diagnosis. Learn about assistive technology, legal rights and legislation, special education, leisure activities and more.
Fragile X Foundation
The National Fragile X Foundation unites the Fragile X community to enrich lives through educational and emotional support, promote public and professional awareness, and advance research toward improved treatments and a cure for Fragile X.
Genetics Home Reference
This is the National Institute of Health’s website for consumer information about genetic conditions and the genes responsible for those conditions.
Healthfinder has a searchable library with information on prevention, wellness, diseases, conditions, alternative medicine, insurance, ratings of organizations, online check-ups.
This is a national website which defines Marfan’s Syndrome and provides resources on-line and in print.
Mental Health Information
Descriptions of the conditions, treatment, and research. There is a section that requires payment to access more information.
Muscular Dystrophy Association (MDA)
MDA is a voluntary health agency – a dedicated partnership between scientists and concerned citizens aimed at conquering neuromuscular diseases that affect more than a million Americans.
National Institutes of Health (NIH)
NIH is the nation’s medical research agency – making important medical discoveries that improve health and save lives. NIH, a part of the U.S. Department of Health and Human Services, is the primary Federal agency for conducting and supporting medical research.
National Library of Medicine
This site is a searchable database where you can access information on any medical condition.
Now You Have A Diagnosis: What’s Next?
This guide can help you to find out more about your diagnosis and evaluate information to make treatment decisions. Click on the links to the left of the text to view more.
Office of Rare Diseases
The Office of Rare Diseases (ORD) in the National Institutes for Health provides information on more than 6000 rare diseases, including current research, publications from scientific and medical journals, completed research, ongoing studies, and patient support groups.
Parent’s Guide to Autism: Understanding & Helping Your Child – Guide to Healthcare Schools
Millions of American families go through the challenges of having a child with autism or Asperger’s syndrome. Yet the causes of, and treatments for, these neurological conditions are far from fully understood. Parents of a child on the autism spectrum can often feel as if they are going it alone. Fortunately, there are enough sympathetic communities and informational resources on the Internet that this should never be the case. The facts, book recommendations, online resources and web communities listed below should help concerned parents whose child has just received an autism or Asperger’s diagnosis get started on the road to understanding what their child needs and how to provide it.
Sensory Integration Resource Center
Based at the University of Colorado Health Sciences Center, this site offers information to improve the quality of life for children, adolescents and adults with sensory integration dysfunction (DSI).
State Health Facts Online
Statehealthfacts.org is a project of the Henry J. Kaiser Family Foundation and is designed to provide free, up-to-date, and easy-to-use health data on all 50 states. Statehealthfacts.org provides data on more than 500 health topics.
United Cerebral Palsy (UCP)
UCP is the leading source of information on cerebral palsy and is a pivotal advocate for the rights of persons with any disability. As one of the largest health charities in America, the UCP mission is to advance the independence, productivity and full citizenship of people with disabilities through an affiliate network.